At Newsome Law, we can help Indiana families in this position. Our work focuses on making sure your loved one has access to the level of care they deserve, and that your family is not left to carry that financial burden alone. If you have questions about what happened or what you may be entitled to, we invite you to call us for a free, no-obligation conversation.
How Locked-In Syndrome Affects Indiana Families Long-Term
Locked-in syndrome is a condition in which a person retains full consciousness and cognitive awareness but loses virtually all voluntary movement. It most commonly results from a brainstem stroke. The most important thing to note is that the person inside is still there, still thinking, still feeling. But the ability to move, to speak, and in most cases to breathe without assistance has been lost.
For families, the first encounter with this diagnosis is often disorienting. Your loved one may be able to communicate only through eye movements or blinking, or may not yet have a reliable way to communicate at all. The clinical picture can look, to the untrained eye, like a coma or vegetative state. That distinction matters enormously, and we will return to it.
Caring for someone with locked-in syndrome is not a short-term undertaking. It is a lifelong commitment that involves a wide range of specialized medical support.
None of this is inexpensive. And in Indiana, even though the overall cost of living is generally below the national average, long-term care costs run close to national median levels, meaning families face tens of thousands of dollars in annual expenses for the long haul.
| Type of Care | Estimated Cost in Indiana |
| Private duty nurse | $70/hour |
| Visit rate | $175/visit |
| Nursing home — semi-private room | $107,310/year |
| Nursing home — private room | $123,918/year |
Source: CareScout/Genworth 2025 Cost of Care Survey
Our Process
We guide you through every step with clear communication and compassionate support.
Free Consultation
Call us anytime to discuss your case. We listen carefully and answer all your questions with no obligation.
Medical Review
Our team conducts a thorough investigation with qualified medical experts to determine if malpractice occurred.
Legal Action
If we find evidence of negligence, we build a strong case and handle all legal aspects on your behalf.
Secure Recovery
We fight to secure the financial resources your family needs for long-term care and peace of mind.
Why Choose Newsome Law After a Locked-In Syndrome Diagnosis
Recovering compensation following a locked-in syndrome diagnosis allows you to begin building the financial foundation your loved one will need for a lifetime of care. It also ensures that you don’t need to bankrupt yourself to get your loved one the care they need.
When our locked-in syndrome lawyers take on a case like this, we work to understand the full scope of what your loved one will require: the nurses, the equipment, the therapies, the residential needs, the modifications to daily life. A settlement or verdict we obtain on your behalf could cover:
- Ongoing and future medical expenses, including nursing and specialist care
- Assistive technology and communication devices
- Home modification or specialized residential care costs
- Lost income and future earnings
- Pain and suffering
- Lost quality of life
- The profound emotional toll on family caregivers
A verdict or award would also help create a care plan that does not require constant financial crisis management, allow your family to focus on being present with your loved one instead of scrambling for resources, and ensure a future that has some structure and stability.
We work closely with families throughout this process. That means you work with the attorney assigned to your case, not just case managers or paralegals. It means working with medical experts who can evaluate your loved one’s condition and care needs honestly. And it means staying in close contact with you, so nothing gets lost.
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What Happens If a Medical Provider’s Negligence Led to My Loved One’s Locked-In Syndrome?
Not every case of locked-in syndrome involves medical error. Strokes can and do occur even when care is appropriate and timely. We recognize that, and we will tell you honestly if we believe negligence was not a factor in what happened to your loved one.
But in some cases, the outcome was shaped by what did or did not happen in the hours surrounding the event. Some of the scenarios we investigate include:
- Delayed diagnosis or failure to diagnose: Stroke symptoms were present but not recognized or acted upon promptly, closing the window for clot-busting or clot-retrieval treatment.
- Failure to transfer: A patient was held at a facility that could not provide advanced stroke intervention when a transfer was warranted.
- Premature discharge: A patient was sent home or to a lower level of care before the situation was fully evaluated.
- Missed or dismissed warning signs: Earlier symptoms, such as a TIA, were not appropriately worked up or followed.
- Misdiagnosis: Stroke was attributed to another cause, delaying the correct response.
Transfer Windows Matter
In stroke care, time is the single most critical variable. When a patient suffers a brainstem stroke, they need to reach a comprehensive stroke center capable of performing endovascular thrombectomy. Many Indiana patients, particularly those in rural areas, are first brought to a hospital that cannot perform this procedure and must be transferred.
The measure used to evaluate how quickly that transfer happens is called door-in-door-out time, or DIDO: the time between when a patient arrives at the first hospital and when they leave for the one that can treat them. National guidelines call for DIDO times of 90-120 minutes or less.
Per JAMA, Indiana’s median DIDO times are:
- 132 to 144 minutes for acute ischemic stroke eligible for endovascular therapy
- 194 to 215 minutes for other acute ischemic stroke
Misdiagnosed Locked-In Syndrome Affects the Care Your Loved One Receives
Because patients cannot move and often cannot speak, the condition is frequently mistaken for a coma or a persistent vegetative state. The critical difference—that the person with LIS remains conscious and aware—can be missed entirely.
Proper evaluation for locked-in syndrome involves specific clinical assessments, often including the use of command-following eye movement tests and neuroimaging. When those steps are delayed or skipped, a patient may remain undetected as conscious and aware for days, weeks, or longer.
If you are unsure what happened or if something about the sequence of events does not sit right with you, a legal and medical review can help your family understand the picture more clearly. That review is free, and it carries no obligation.
We Start By Learning Your Experience
Before we can offer an assessment, we need to understand the full story:
- The timeline of events
- What care was provided and when
- What symptoms were present
- What was communicated to your family at each step
We then work to obtain and review the complete medical record, including the following:
- Emergency department notes
- Imaging
- Physician orders
- Nursing documentation
- Transfer records
- Any communication between providers
From there, we work with independent medical experts who can evaluate whether the standard of care was met and, if not, how any deviation contributed to the outcome. These experts are central to any case involving complex neurological injury. Their assessments shape how we understand what happened and how we present it.
We will be honest with you throughout. If we determine that the care provided was appropriate, we will tell you so. If we find that negligence did contribute to what happened, we will explain what that means, what we believe we can demonstrate, and what the realistic path forward looks like.
Our firm has handled complex cases involving catastrophic neurological injury, and we understand the medical and legal terrain these cases require.
Ready to Talk? We Are Here to Listen.
Your family did not expect to be in this situation. Neither did your loved one. Our job is to help you understand your options, with honesty and clarity and without pressure.
A free, confidential consultation is available to you at any time. There is no obligation, no sales pitch, and no judgment. If we can help, we will tell you how. If we cannot, we will tell you that too.
Contact Newsome Law today to see how our attorney can help you find answers.
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