Tracheostomy & Ventilator Management
A tracheostomy and a ventilator can feel like foreign objects at first: tubes, machines, and sounds that take over a quiet room. But for many families managing locked-in syndrome, this...
SSDI & SSI Disability Benefits for LIS
Locked-in syndrome (LIS) changes everything overnight, including a family's finances. Once income stops, Social Security disability benefits can become a lifeline, but only if the claim is built the right...
Pediatric Locked-In Syndrome & Negligence
Learning your child has locked-in syndrome can feel like standing in a room with no map. It's a rare diagnosis, especially in children, and that rarity brings its own quiet...
Is Locked-In Syndrome a Permanent State or Can It Be Reversed?
While there are occasional cases that make the news of someone recovering from locked-in syndrome or a similar diagnosis, this is incredibly rare. Most people diagnosed with this condition do...
Why Is There A Danger Of Pulmonary Complications With Locked In Syndrome?
The area of the brain that can cause locked-in syndrome (the pons) following a stroke is the same area of the brain that regulates the pace and depth of autonomic...
How Does Locked-In Syndrome Affect the Person’s Life?
Because it causes near-global paralysis, takes away the ability to speak, and prevents a person from providing self-care, locked-in syndrome affects almost every aspect of a person's life. Most people...