What We’ve Learned From Working Alongside Caregivers
Every family living with locked-in syndrome (LIS) teaches us something new about resilience. Locked-in syndrome most often follows a stroke...
Legally Reviewed By
Attorney Rich Newsome
Catastrophic Injury & Medical Malpractice Attorney
25+ years experience
There is a particular kind of fear that comes with locked-in syndrome—not just for the person living with it, but for everyone around them. One day someone is running, working, and laughing with their kids. The next, a stroke misdiagnosis, traumatic injury, or a delayed response leaves them almost entirely unable to move or speak while still aware of everything going on around them. Families are left standing in a hospital hallway trying to understand what just happened to their lives.
That moment—the confusion, the fear, and the sense that no one is giving you straight answers—is exactly why we do this work.
When a loved one is suddenly locked inside a body that no longer responds, the questions come fast, and they don’t stop.
Hospitals and specialists move on to the next case. Families don’t get that luxury; they’re left to piece together what happened and figure out what comes next, often with very little guidance.
We’ve watched this play out with families whose loved one showed textbook warning signs and still went home undiagnosed. In one case we wrote about in our book, a young, active man became disoriented during a routine chiropractic appointment and was rushed to the emergency room, where two physicians reviewed his scans and test results without ever connecting them to a stroke in progress. Twelve hours passed before anyone recognized what was happening. Those twelve hours changed the entire shape of his life, and his family’s life, going forward.
Minor strokes are missed in a large share of cases; mild symptoms like dizziness, vertigo, or confusion are often misread as something benign. Diagnostic errors of all kinds affect millions of Americans every year, and a meaningful share of those people are seriously harmed as a result. Families deserve to know this isn’t an isolated event, and they deserve real answers about what happened to their loved one, not silence.
We’ve also watched this play out with patients who received appropriate care and whose families still have to deal with this new reality. We can offer support in either situation.
A courtroom win, however large, doesn’t hand a family their old life back. It can fund care, home modifications, therapy, and equipment—and that matters enormously—but it doesn’t answer the everyday, three-in-the-morning questions families are actually sitting with:
That’s the gap we wrote Locked-In Syndrome: A Guide for Families and Caregivers to fill. It’s meant to sit on a nightstand, not a shelf—something a parent or spouse can reach for when they can’t sleep and their mind is switching endlessly between logistics, fear, confusion, anger, and guilt. It covers the practical groundwork: communication tools, caregiving routines, what to expect medically, and how to navigate the systems that will now be part of daily life. It also discusses the need for self-care and rest without guilt.
It’s the bigger-picture awareness we think every family in this situation deserves, alongside the legal advocacy we provide. Whether a family calls us for a case or simply opens the book, our goal is the same: give them something solid to hold onto.
If a delayed diagnosis led to permanent harm, you may be entitled to compensation. Speak with our legal team today.
Start My Free Case ReviewWe’ve seen what it looks like when a family decides they are going to build a new life, not just endure one. One father converted his garage into what he now calls an ICU, with shelves lined with tubing, suction supplies, monitors, and lifts, everything his son’s care team needs, organized and ready. The rest of the house was reconfigured too: a bedroom built around medical equipment, a dedicated physical therapy space, a living room arranged so his son’s favorite spot—in front of the fish tank, watching the fish drift and dart—is always within reach.
None of that gives him back the ability to run, to play the sports he loved, or to speak without a keypad and a blink. His father is honest about that: there is no real justice for someone who has lost almost everything, and the pain doesn’t fully go away. But there is still a life to build inside the limits that a missed diagnosis left behind—good days, moments of connection, a favorite takeout order confirmed with a single blink, a nurse who means it when she says, “We love him.”
That’s what “moving forward” looks like in practice. Not getting your family’s old life back, but building something real and worth living inside the new one.
We take on locked-in syndrome cases because families facing this need more than a lawsuit; they deserve someone who will explain what happened, fight for the resources that make ongoing care possible, and point them toward the practical knowledge that makes the next 10 or 30 years livable. That’s the full scope of what we try to offer: legal advocacy when a diagnosis was missed, and a guide families can turn to in the middle of the night when the questions won’t let them sleep.
No family should have to figure this out alone. We intend to make sure they don’t. A locked-in syndrome lawyer at Newsome Law is here to help whenever you need us. The medical system may have left you behind, but we won’t. Call whenever you are ready for a free consultation. We would be honored to learn your family’s story.