Locked-In Syndrome Changes Everything
Locked-in syndrome occurs when damage to the brainstem, most often from a stroke, severs the connection between a person’s mind and their body. Cognition, hearing, and awareness typically remain intact. Voluntary movement does not, except, in many cases, for the eyes. Someone with LIS may understand every word spoken in the room and have no way to answer back, at least not without specialized communication support.
That reality reshapes a family’s future both emotionally and financially. A person with locked-in syndrome (LIS) usually needs round-the-clock skilled nursing, specialized equipment for communication and mobility, ongoing therapy, and a caregiving team trained to recognize needs that can’t be spoken aloud.
This isn’t short-term rehabilitation. It’s a lifetime of care, and North Dakota families deserve to understand what that actually costs before they’re blindsided by it.
| Type of Care | Estimated Cost in North Dakota |
| Private duty nurse (hourly rate) | $85/hour |
| Private duty nurse (visit rate) | $150/visit |
| Long-term care facility, e.g., nursing home (semi-private room) | $138,335/year |
| Long-term care facility, e.g., nursing home (private room) | $147,643/year |
Source: Genworth
Multiply any of those numbers across a normal lifespan, and the scale of what’s ahead becomes clear. This is precisely why compensation in a successful LIS case is calculated around lifelong projected costs, not just the bills that have already come in.
What It’s Like to Work With Newsome Law
Families rarely come to us with legal questions already formed. They come with confusion, grief, and a hospital bill they aren’t prepared to read. Our job is to walk alongside you as both an advocate and a guide, reviewing what happened, explaining what we find in plain language, and handling the legal complexity so you can focus on your loved one.
When a case involves negligence, a settlement or verdict isn’t just about the past. It’s designed to fund what’s ahead: the nursing care, the equipment, the home modifications, lost income, and the pain and suffering your family has already endured. Done right, it’s the difference between rationing care and providing it without a second thought.
We know this time is stressful, and we want to do everything in our power to keep things as stable as possible for you. You’ll have direct access to your attorney, not a rotating cast of case managers. We stay closely involved with your family throughout, because a case like this isn’t a file to us. It’s your family’s future.
Our Process
We guide you through every step with clear communication and compassionate support.
Free Consultation
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Medical Review
Our team conducts a thorough investigation with qualified medical experts to determine if malpractice occurred.
Legal Action
If we find evidence of negligence, we build a strong case and handle all legal aspects on your behalf.
Secure Recovery
We fight to secure the financial resources your family needs for long-term care and peace of mind.
Could Something Have Been Prevented?
This is the question every family in this position eventually asks, and it deserves an honest answer, not a reflexive one. Not every devastating outcome is the result of malpractice. Strokes happen, and even excellent care doesn’t guarantee a good result. But there are recognizable patterns where negligence contributes to a patient developing locked-in syndrome or being treated as unaware.
A Diagnosis That Came Too Late
Stroke treatment operates on a clock. The medications and procedures that can limit brain damage only work within a narrow window after symptoms begin, and every hour that passes without a diagnosis narrows a patient’s chances of a meaningful recovery. When symptoms are misread, downplayed, or simply not connected to a stroke in progress, that window can close before anyone realizes what’s happening. By the time the correct diagnosis is made, the damage that leads to locked-in syndrome may already be done.
Imaging That Wasn’t Ordered, or a Transfer That Didn’t Happen
Locked-in syndrome results from damage to the brainstem, which doesn’t always show up clearly on the CT scans used in a typical emergency room stroke workup. Catching it often requires a physician to recognize the specific pattern of symptoms and order more advanced imaging, or to initiate a transfer to a facility equipped to evaluate a brainstem stroke properly. When that step doesn’t happen, because the symptoms weren’t recognized as a red flag, or because the need for specialized imaging wasn’t acted on, a treatable event can be allowed to progress unchecked.
Held at a Facility That Wasn’t Equipped to Treat the Stroke
Not every hospital has the neurological specialists or equipment needed to fully treat a complex stroke. Recognizing that limitation and transferring a patient promptly is part of appropriate care. When a hospital instead keeps a patient longer than it should, whether from a delay in recognizing the need to transfer, difficulty arranging the transfer, or a reluctance to send the patient elsewhere, the additional time without advanced treatment can directly worsen the outcome.
North Dakota’s median transfer times hover around the fewer-than-120-minute guideline, according to JAMA:
- 119-125 minutes for acute ischemic stroke eligible for endovascular therapy
- 115-167 minutes for other acute ischemic stroke
Sent Home Before the Full Picture Was Clear
Some patients are discharged before the extent of a stroke, or the presence of one at all, has been fully understood. Symptoms that seem to resolve, or that are attributed to something less serious, can lead to a patient being sent home when they actually need further evaluation and treatment. A premature discharge can mean a treatable condition is left to progress somewhere far from the medical attention it needs.
When Locked-In Syndrome Looks Like a Coma
This point deserves particular attention. Locked-in syndrome is one of the most frequently misdiagnosed conditions in medicine, because from the outside, a person with LIS can look identical to someone in a coma or a persistent vegetative state.
The difference lies in careful, repeated neurological evaluation, checking specifically for voluntary eye movement, which is often the only channel of communication left. It’s not uncommon for family members, who spend far more time at the bedside than any single physician, to notice a flicker of intentional eye movement before hospital staff do. When that happens, and it isn’t acted on, a patient who is present and aware is not considered so. This failure to diagnose an aware person with LIS can have a debilitating effect on their mental health.
If any of this sounds familiar, a free legal and medical review can help you understand what actually happened during your loved one’s diagnosis and treatment, and whether the standard of care was met.
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How We Look Into Your Loved One’s Care
We start by listening to your account of what happened, in your own words and timeline, before we ever open a medical chart. From there, we retrieve the full medical record and bring in independent physicians to evaluate the care your loved one received against the standard that should have applied.
If that review doesn’t turn up evidence of negligence, we’ll tell you plainly. We’re not interested in manufacturing a case that isn’t there. But when the evidence does point to a preventable failure, our experience with complex, catastrophic-injury cases like this one means we know how to build it and how to pursue it fully—if you choose that route.
What It Costs to Hire Us
It costs nothing upfront. We work on a contingency basis, which means:
- We offer a free, no-obligation consultation to start.
- We’re paid only if we recover compensation for your family.
- There is no pressure to decide anything before you’re ready.
Families are already carrying enough. The decision to explore a legal claim shouldn’t add financial risk on top of it.
We’re Here When You’re Ready
If you’re trying to understand what happened to your loved one, or you simply need someone to explain what your options are, a locked-in syndrome lawyer at Newsome Law is glad to talk it through. There’s no cost, no obligation, and no pressure to move faster than feels right for your family.
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